Congestive Heart Failure refers to a condition that renders the heart unable to efficiently pump blood to the body’s organs. The condition itself can be caused by a number of pre-existing issues. These include:
• High blood pressure
• Previous heart attack
• Coronary disease of the arteries
• Congenital heart defects
• Diseased or damaged heart valves
Congestive heart failure can typically be identified by swollen legs or ankles, swelling of the abdomen or shortness of breath. Due to the heart’s inability to pump blood properly the blood tends to pool in certain areas of the body which leads to swelling. While it generally occurs in the legs, other parts of the body can be affected. The shortness of breath comes about when fluid collects in the lungs, which tends to worsen when the person is lying down.
Methods for the treatment of congestive failure have improved over the years, but in many cases, without a heart transplant the patient eventually dies. Depending on the severity of the condition some patients respond to drugs or operations such as valve replacement. With proper medical supervision some people can live with congestive heart failure for years. For some people however, the disease becomes progressively worse which leads to changes in the course of treatment and more intense medical supervision. However, death results rather quickly.
Stages of Congestive Heart Failure
Typically, the stages of congestive heart failure are as follows:
1. Initially, patients may display no symptoms of the disease. While they may feel a bit more tired than usual during physical activity, it is not usually enough to cause alarm.
2. Over time there is pronounced fatigue during physical activity. Heart palpitations may be experenced even during limited exercise. On the other hand, resting may cause the symptoms to lessen or to go away.
3. At this stage the person may be fine while rest, but some everyday tasks may lead to tiredness and shortness of breath. Clearly, at this point physical activity and exercise become severely limited.
4. During the final stages of the illness the person’s day to day life becomes severely affected. Any form of physical activity will lead to tiredness and put additional strain on the heart. Even when at rest there may be symptoms which signal the heart’s inability to function properly, in addition to difficulty breathing.
According to website wrongdiagnosis.com roughly 1.76% of Americans are suffering from congestive heart failure. Naturally the figures are higher for people over 65. While some people may be more prone to heart failure due to circumstances like defects at birth, lifestyle changes can make a big difference in preventing the disease. However, end stage congestive heart failure ultimately leads t death as the body shuts down.
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March 3rd, 2009 at 7:37 am
My husband had a heart attack at 37. He’s now 47 but hasn’t exactly changed his lifestyle enough satisfy his doctor. He recently had a DOT physical and was told to lose 50 lbs. But, he continues to eat a high-fat and high-salt diet and gets little or no exercise. He has severe sleep apnea and can only sleep with a CPAP machine. His breathing is very labored and I can hear him breathing from across the room. However, his blood pressure and cholesterol checked out okay. He also has a slight vitamin D deficiency which he is taking a prescription tablet for. I’m concerned that he’s setting him self up for another heart attack. He thinks because his blood pressure and cholo are alright that he’s just fine. Should I worry? Also, as a side note, he’s suffering from some ED problems. What should I do to get him back on the right track?
March 13th, 2009 at 7:57 am
Hopefully your husband will listen and start losing weight to protect his heart and improve his overall health. We will be posting articles on natural ways to help with ED problems soon.
March 26th, 2009 at 3:58 am
My mother is 74 and since 1999 suffered from 3 heart attacks. The first resulted in a double by pass. The second was mild but the third shut down pretty much the whole left side of her heart. She’s not exactly followed Drs orders by changing her diet and it took her alot longer to quit smoking than it should have. She recently (last year) had to have an above the knee amputation due to PAD, and she also suffers from CHF. I am worried that she is in the final stages of this, because her doctor has basically said that there is nothing more they can do for her. She’s on 160 mg of lasix a day and is starting to sleep alot and become short of breath when she is just sitting in her chair. Is this a painful death, and what can I expect to happen.
April 18th, 2009 at 12:48 am
Shelia, I lost my mom on Feburary 14, 2009. She died of congestive heart failure. She sounds much like your mom.
Honey, your mom is dying. Please make her comfortable and get her 24 hour care. Love her. Love her. Embrace her, hold her, kiss her. Tell her how much you care and how much she means to you. Stay with her as much as you can. She’s scared and needs to know that there is life after death and you’ll all see each other again.
Just pour out the love.
May 6th, 2009 at 4:51 pm
My father died of Congestive heart failure on April 30th. I was with him his final hours as he slipped into a coma and died. He lived with this condition for at least five years..They will become tired more. Eventually he had trouble breathing even sitting down. he refused to lay down and would sleep sitting up. The day before he died he told me that “things were going in but not going out”. I sat with him until he passed..just showered him with love..that is all I could suggest..tell them you love them and give a bit of morphine to calm them..
I understand the sadness..
June 26th, 2009 at 2:20 pm
My grandmother is suffering with CHF. She is 89 years old and recently had to be taken to the hospital because she couldnt breath and they found fluid in her lungs with the beginning stages of pneumonia. She is refusing to eat anymore and says she isnt hungry. She is wanting to sleep alot more and still not breathing good. She also deals with a painful bakers cyst behind her knee. Im so scared im going to get the phone call from my mother telling me the bad news. I live 45 min away and im so confused as what to do. I want to be by her side and my mother keeps telling me she wants to see me all the time but its so hard with my job. Im so scared and I dont know how much longer she has. She just repeats the same thing over and over again saying she isnt going to be here much longer. Im terrified…….
July 26th, 2009 at 12:31 pm
My mother is 92….has chf with ef of 25%. and started falling when standing..doctor took her off of 25mg coreg to 12-1/2mg coreg twice a day because of orthostatic hypotension. He said she needed the larger dose for her heart and hated to decrease it but didn’t want her fallling.
What symptoms or events will I encounter with this lower dose? Will this shorten her life?
September 26th, 2009 at 2:49 am
my grandmother is suffering from congestive heart failure. She has been on kidney dialysis for about a year now. She is starting to turn a gray color and can hardly get around. She moves very slowly. She get dialysis every monday, wednesday, and friday. This past wednesday they took 18 pounds of fluid off of her. She is also a bad diabetic. This past week she is also starting to have angina attacks. How long do you think I have with her. I live 4 and a half hours away from here and she has yet to see my youngest son. Should I hurry and take him up there or do i have time to save some money??
October 14th, 2009 at 2:38 pm
I Understand how u all feel. Number One lots love and patience. I’m 45 have had problems X’s 3 since 03′ CHF. Tachycardia, Cardiomyopathy. 3 Death warrants– my EF rate using nuclear rating is less than 20% I also have a pacemaker and Defibrillator– No bad colestral numbers also take 28 kinds of meds and supplements a day. Prognosis i should have been gone three years ago. I wouldn’t be able to make it without my wife and the lord Jehovah..I have peace and know that i can try and help others with the removal of stress and thoughts of happiness. thought of the night–Psalms 34:18-Jehovah is near to those that are broken at heart, And those who are crushed in spirit he save’s……I am at moosemoose97@msn.com
January 30th, 2010 at 5:31 pm
My Grandma, 94 has CHF and is in the end stage. She is my Mom, the one who raised me. I am the only one she wants to take care of her. I baby her and make her time as pleasant as possible. She is a minister so she knows where she is going, but it doesnt make it any easier for me. She is the matriarc of our family. Give of yourself freely and be there and let them know they are loved and touch and kiss them as much as u can. Its hard, but make a memory while they are still here with u. Record your loved one telling stories or singing or just talking to u. This is one way that is a blessing to me.
February 19th, 2010 at 12:48 am
My husband,36 passed from CHF on 11/09. We have 3 children and it’s very hard.He was diagnosed about 6yrs ago, ang got progressively worse over the years although he didn’t want us to know just how tired and sick he really was. We didn’t get those last moments with him, because it happend so quickly, but we do cherish all the other precious moments we had with him over the years..
February 24th, 2010 at 12:40 pm
I am main caregiver for my 91 year old mother in law. She is in final stage of CHF. It is reassuring to read some of the posts here. In the hospital again now, we are at the point to decide if we will re-hospitalize her when she gets worse again. Her EF is 10%, and has lots of consolidated fluid in both lungs. It’s 1 step forward 2 steps back. I do hope the she goes peacefully.
February 28th, 2010 at 3:29 pm
my 91 year old mother has had a pace maker for 20 yrs.
with one bad side on her heart. about 10 years ago we learned she had congestive heart failure. one year ago she was told the good side of her heart was no longer good. she has been able to do less and less and for the past month sleeps 22 hrs a day. gets up to eat and then right back to bed. it seems like an eternity to me.
not a day goes by that she doesn’t say she wishes she were dead 5—10 per day. i don’t wish her dead but i don’t want her in the obvious anguish she’s in. oxygen
is not helping i don’t think. how much longer can this go on ?
March 3rd, 2010 at 11:33 pm
im 19 and am currently living with chf. i developed it about two years ago and was told last tuesday that i have about 2 weeks or less to go. it kills me reading all of these and knowing that all of you are twice my age and know someone who is suffering from it, but yet im the one lving with it. i speak for all of us with chf when i say thank you for being by our side though the rough and unbearable times. thanks for everything you guys do.
March 14th, 2010 at 8:24 pm
My mom is almost 50 and was diagnosed with heart disease last year. She works 15 hour shifts everyday and sometimes a 36 hour shift. She can’t sleep anymore, shes very pail in the face, chest pains, high blood pressure shortness of breath, can’t breathe if shes laying down and has a arrhythmia of the heart. My mom is wasting away in front of me and won’t go to the doctors or take her medications or change her lifestyle. I’m 18 and now both of my parents are dieing in front of my eyes.. she has already had mini strokes and is treating it as if its ok to die. How can I get her to fight for her life I cant save my dad I know that but is their a way to save my mom. She has no health insurance and she won’t cooperate with me to get help. what can I do for her? Do i just make her comfortable? Please Help me!
March 23rd, 2010 at 1:22 pm
My mother just turned 60. She is at the endstage of chf.
She has had 6 heart attacks and 4 strokes. I have signed so many DNR’s. I want to say this to Ash, You may not know everything that the doctors have told your mom. Be helpful, kind, loving. I have found that pushing my mom pushes her the other way. Her medications, you might make breakfast and have her medicines waiting with the meal and just talk thru it. If she presist not to take the meds, just keep doing the same routine. Never argue about the meds. She needs support, but helping her this way also shows her your not giving up on her. She also doesn’t want to show you that she is weak. She is your mom and wants to be strong for you. There is ways to help her without stressing her or yourself as much. She will respect and appreciate your efforts with the meds, she will eventually take them but it may take time. Presistence, patience, and prayer. My mom is in the final stage and I am the parent now and she is the child. Unfortunatly, your only 18. I am so sorry. I am 45 and I too am not ready. Remember you may not know all the Doctor has told
her and what she is able to emotionally deal with right now. We do come to a place that even if with medication or not, we except our future that is placed before us. Don”t worry about the bills. That can be dealt with later. She has to be willing to change her lifestyle. She is fighting to continue to be independent. She doesn’t want to show weakness. If you are religous, have your minister just drop by and visit when she is home and you have an erron to run so they can visit. Also contact Hospice, they are great place to learn on how patients deal with this type of illness. GodBless!
March 23rd, 2010 at 1:49 pm
my mother is 60yrs old, has one valve of her heart functioning. She has survived one more year than expected. The panic attacks are starting again, shortness of breath triggers them, and any exertion weakens her. I know that only god knows when he will take her home. with one valve left I dont when the end will come. Any comments would help.
Kim
March 26th, 2010 at 9:03 pm
my Daddy has congestive heart failure for some years now. But I fear he is in the final stage now, he has been in the hospital four times this year so far for pneumonia, he has been coughing up mucus with some blood in it so the past 3 months but for the past 3 days in the hospital he is coughing up about 2 i/2 cups of bright red mucus and his memory seems to be diminishing very rapidly and he is so severly short of breath and has no energy to even stand on his own or even feed himself. He is only 71yrs old. And for the past 3 days he cannot even remember where he is or who I am.
IS MY DADDY IN THE FINAL STAGE OF DYING FROM CONGESTIVE HEART FAILURE ?
SINCERELY, DEBBIE ( HIS ONLY DAUGHTER ) IN DESPERATE NEED OF SOME ANSWERS.
April 7th, 2010 at 6:49 pm
Debbie, my dad is going through the same process. He has now been in hospital for over 4wks now and they have now just transfered him down to the hospice.
My dad is 63 had contracted chf through a heart attack he had may 26 last year. He is now be-bound and experiencing similar symptoms as yours, but has yet to not recognise me but I have read that is a common outcome through the lack of blood being distributed to the brain.
I’m sorry to say but as your dad sounds very much to be in the same condition as mine your dad has not got long left. My family arranged a meeting with his doctor and the (dreaded) question was asked and my dad was give just one month. Doctors dont tend to inform you of this fact unless you ask the question.
All I can advise you to do is be there for your dad, be at his side and although he may not recognise you speak to him and talk about strong memories he may still have that may give him some comfort.
I hope I have given you the answers you were after.
Be strong, and be strong for your daddy
Take care
April 15th, 2010 at 11:50 am
Thank you for this site and everyone’s comments. I thougth I was all alone with this disease -watching it take my father. He continues to smoke unfiltered Pall Mall cigs, just got out of the hospital, kicked another round of pneumonia, has edema of legs, sleeps sitting up, wishes to die, cannot get around without being severely winded but bless his heart eats when I bring him food. I give him a 1/4 xanex to ease his fears and assist with sleep but feel guilty I am drugging him. His doctor did not think he would still be alive this week. I cherish my time with him and hope he goes quietly and quickly (anything else would scare the bejesus out of him). I am currently on leave of absence and am worried about what will happen when I have to return to work. The unknown has to be the most unsettling. I offer prayers of comfort to all who have shared their fears and feelings. Thank you for allowing me to express mine too.
April 16th, 2010 at 1:03 pm
Im 45 aand just finished reading your coments,tears fill my eyes to the point of not being able to see.I want all of you to know that weather your alone or with some one,there are people that you will never know that love you!Death can be a hard thing,but our lord Jesus has given us a way home! REMEMBER death is not the end of life,but just the beginning of life.My prayers an hopes for all of you! JIL
April 23rd, 2010 at 10:24 am
Just read your comments and can completely empathise with you all. I am 70 and was diagnosed with CHF three years ago. Having been, and am on endless medication and had many different proceedures carried out but I am doing O.K. I know that the ultimate prognosis is death but Hey! I’ve had a good life am almost 50 years married have wonderful children and grandchildren(all healthy tak God) and my husband is still alive and wonderful.DG.Iam so grateful for the life I’ve had and have. Relatives of CHF suferers please don’t worry they are mostly fine and happy everyone has to die sometime. For young sufferers please try to be positive and only remember the goodtimes ad that someoneyou do not know is thinking of you and praying for you. Love to all.
April 23rd, 2010 at 11:50 am
After reading all this I see I am not alone in the care of my 74 year old mom but yet it still feels that way when my siblings refuse to help me with her care. Everyday I hear her cry in pain and beg God to let her die. They say there is nothing else they can do and it could be an hour a day a mont 10 years they just don’t know so I don’t know how to cope or to help her. We were never close but 3 years ago her husband died and she had no one left so she is with me now. I don’t know how to hug her or kiss her or even touch her as I was never allowed to do that. She is angry and bitter and curses me daily no matter how I try and my 17 year old catches the worst of it. Feels like I always have to be on guard and referee and I don’t know how much more I can cope with so I am really lost. She can’t walk around the house without feeling faint or not being able to breathe I don’t know what to expect or look for and she won’t cooperate to help herself she seems to have a need to prove she is invinsible. Cupiedoll64@yahoo.com – Help please
April 24th, 2010 at 3:49 pm
I’m 51 and was just diagnosed with stage 2 1/2 – 3 heart failure. I’m scared and don’t know what to do. I’m taking my meds religiously and am now on a no salt diet. I’m doing all I can to try to get better, but I have a feeling that this is going to be “it” for me. I just hope I have many more years to go…I’m really not ready to meet my maker just yet! Thank you for letting me vent…I’m just a wreck!
May 1st, 2010 at 12:25 am
Roni, I am 37 and was diagnosed with stage 3 CHF four years ago. You are doing the exact right thing, taking meds religiously and limiting sodium intake. Good luck to you. Feel free to vent anytime.
May 1st, 2010 at 3:28 pm
my grandpa(87)is suffereing from a severe heart failure condition and the doctors tell us that he will not live long.
I try to stay as much as i can with him, try to make him happy but unfotunately he feels depressed whenever he remembers how he were years ago. He used to walk long distances and speak so loudly, now he can barely walk 5 meters or speak continuously. He sufferes each minute or 2 from a sever breathless period.
I hope he can live longer and become better, I pray for God to stay with him.
Reading all the comments made me sad, especially for all the young people.
May God Bless Us All, in this life or in the other.
May 3rd, 2010 at 10:08 pm
Unlike most of you I am watching my 36 y/o daughter die with end stage cardiomyopathy. It is the hardest thing I have ever done. Heartbreaking to see her body waste away.She is so precious and I tell her many times each day how much I love her. God is my strength. My family and church are great support. I will keep you all in my prayers.
May 6th, 2010 at 5:56 pm
Can anyone tell me when someone has chf and kidney failure do they sleep alot. My Dad has had 5 heartattacks and a stroke and was diagnosed with chf 3 years ago. thats all he has been doing is sleeping and falls alot now.
May 7th, 2010 at 11:17 pm
My father is 87 and dying with CHF and kidney failure.
He cannot sleep unless sitting up in the chair. His feet are so swollen they look like they will explode. Now he gets up this morning and chases a cow in his pickup behind the house. Comes back says he feels great.
This is driving me insane! They wanted to call hospice in and he said no. He wants no one. They put a cath on him. I’m exhausted. Is all this normal?
May 14th, 2010 at 3:48 am
I WRITE THIS BARELY ABLE TO SEE THE PAGE AS MY EYES ARE FILLED WITH TEARS THAT DO NOT WANT TO STOP.I TOO HAVE CHF AND MY HEART AND PRAYERS GO OUT TO ALL THOSE WHO ARE SUFFERING WITH IT AND THEIR LOVED ONES. MY TEARS ARE FOR MY GRANDBABIES {8 & 4} WHOSE LITTLE HEARTS WILL BE SO SAD AND BROKEN WHEN THEIR NANA GOES AWAY FOREVER. HOWEVER I DO TELL THEM WE WILL BE TOGETHER ONE DAY AGAIN AND JUST HOLD THAT CLOSE TO THEIR HEARTS.MAY THE LORD BE WITH YOU ALL.
June 10th, 2010 at 9:59 pm
my husband has chf, copd, sleep apnea, smokes 3 packs cigarettes aday and weighs 320 ibs. will nor sleep with his machine, and eats a lot of fatty foods, was diagonosed 5 years ago. how long can he survive with this life style J. smith
June 14th, 2010 at 2:14 am
My father passed away Jan 8th of CHF. I was the one who was with him when he passed. I have never lost anyone in my lifetime. I loved him so much and went through 2 yrs of therapy to prepare myself for his passing. His last day he was very weak yet very much of clear mind. His body was just shutting down. He got up out of his chair went to a chair in the bathroom and went unconscience. I watched it happen. It couldnt have been more peaceful and quick. I never saw his body react or struggle. It was as if he just left his body. I am so thankful I was with him and he was not alone. If I could encourage anyone going through this and thinking what will it be like. You will get through it. Its a process. Ive been grieving 5 mths now. But I get breaks. Its important to have your time alone to grieve and also to talk with people close at heart to you. I just remember, what would my father want me to do. That gives me strength, but I also allow myself to feel what I feel. Its terribly painful and Im not through it yet. I wish you all the best. I just say if the person is still alive with CHF love em love em love em. Thats the only thing they need. Be strong….
June 14th, 2010 at 11:54 pm
I have had all of my major organs fighting over which one would get to “take me out” Heart attacks began at 32. Now diabetes going for the kidneys…chf going after my heart, copd taking over the lungs and hyperlipodemia
ripping at my liver. I’m 54. I never expected to live past 40…but here I am. I hate to leave my youngest granddaughter as she has been with me since she was a week old. Her parents are idiots but she’s only 10, So my goal is to stick around until she’s at least 18. It can be very sad and depressing, however, I choose to be happy and to find something humerous every single day. Lucky for me that I’ve lost enough brain cells that I am able to create my own comedy just trying to get through the day. Keep funny people around you. LAUGH at yourself and others and whatever you can find. I don’t let my boys know how bad it is, or anyone else in my family either. They will just sit around crying and I don’t need that. Iv’e been with 2 loved ones as they died. Dying is easier than watching someone else die. So take care of yourselves and let your loved one do what they want with whatever time they have left. Prayers to all of you.
June 15th, 2010 at 1:29 am
My dad is 77. He was diagnosed about 8 yrs ago with the need for a valve fix and he refused surgery. He was given a 3 yr lifespan w/o the surgery. Now my dads heart failure is in the final stage. I agree w/what so many have written. I live 1300 miles away & feel so helpless in relation to when to travel..I am grateful to my husband who has helped me w/2 x a year legnthy visits. I am leaving this weekend to go home again w/my oldest son, hoping they get to visit some. CHF is so hard on all involved. My spirit is staying strong..love is all there is in my opinion..let go of everything & love all I can..& I am choosing to be positive..God Bless us all..om both sides of the fence..take care & thanks for your words.
June 22nd, 2010 at 6:09 pm
My mother I beleive is in end stage chf. In the last 3 years she has had 4 ablations and a pacemaker. The most recent attempt to attempt another ablasion the doctor closed her up and told us there is nothing else he can do. Mom goes into the hospital about every 3 to 4 weeks to have the fluid removed as best as they can from her body. Most recently her doctor reported that her kidney and liver are enlarged as well as her heart. She is hardly eating, due to the high levels of digoxin probably due to the fact that she is so full of fluid. Each time she goes into the hospital she loses anywhere from 10 to 20 lbs of fluid. Her color is now turning gray and her memory is starting to go. Even things we just talked about she does not remember. One thing my mother always had was her mind and now I think that is in jepordy. My father is her main caretaker and I try so hard to assist them as best I can but Dad will not leave her for more than one hour or so. My mother is 79 and I feel as though she will not make it till the end of the summer. I is torture to watch her failing. My mother was so vibrant, mother to 9 children, over 28 grand children and I h ave lost count on the great grand children. My heart is breaking and so is my parents. How can I help, I feel helpless watching my mother die. Any words would help. If I could put a timeframe as to how long, 1 month 2 months, 3 months…. The day to day deterioration is mentally killing my mother and dad. Any comments would help. Thanks everyone for your help.
June 22nd, 2010 at 9:42 pm
My 93-year-old father passed away last Tuesday from CHF. He had been treated for years, had a pacemaker, but refused heart surgery at a younger age until it was too late.
Two days before he died, he became bed-ridden, refused to eat, and did not even have enough breath to speak. My father lived in an upscale assisted living home. His condition was such that caring for him at home was no longer possible. The hospital told us that there was nothing else they could do for him. Yet, he recovered from near-death several times.
For those of you who have witnessed the death of your loved one, I have questions. My father struggled to breathe up until his last breath. Even though Hospice gave him morphine and other drugs to surpress fluids in his chest cavity, he fought so hard and I have no doubt he knew what was going on. While dying, he made horrible gurgling sounds and was fighting so hard to take a breath that his head lifted off the pillow (he was elevated). Prior to his death, I begged the Hospice nurse to give him more morphine because I felt his struggling, gurgling must be painful for him. She gave him another dose after I’d begged for over an hour. 3 min. after the final dose, he took his last breath.
My major question: is this a typical death experience for a very elderly CHF patient? I’m struggling with the fact that perhaps he died in pain.
My father was a WWII hero and a fighter. He was one of the most determined individuals I’ve ever known and his model has served me well throughout my life.
I would appreciate feedback.
July 1st, 2010 at 6:33 pm
Interesting reading! i was diagnosed with CHF 7 months ago. I’m 46, with no medical aid and zero chance of a heart transplant so statistically that gives me at the very most another 15 years of life -providing of course that I take take my meds (Aldactone, Atenelol, Enap, Puresis, Metformin, Disprin). Surreal – because the rent must still be paid so i go to work each day like nothing’s changed and handle the normal run of the mill stuff that one has to deal with and I feel healthy and function well. I look the same, (ok maybe a little bloated some days), and yet, yet underneath it all…. so i’m wondering is there anyone out there who can identify? heatharose@gmail.com
July 7th, 2010 at 7:50 pm
Vickie, my dad passed away from CHF April 12, 2010, at the age of 99, having had minimal heart problems for 30 years. He lived in an assisted living facility, suffered a few small strokes within the past 3 years and his memory was starting to slide. In the last year he became winded after walking several blocks, but he could sleep in his bed, get himself dancing once a week, get himself to meals, etc. Because he kept being taken to the ER for re-hydration, whatever, we got him on hospice. In our state, if an assisted living resident complains of chest pains and shortness of breath, the facility MUST call 911. If the EMTs decide he goes to the ER, that’s where he winds up….for 8 hours on a gurney! This trumps those those POLST and DNR papers we signed. He had been near death several times (my opinion), and it was hard seeing him wait in the ER. Being on Hospice meant no more trips to the ER (his desire). The last week of his life, he was too winded to get up, stayed in bed, too weak to eat, and hospice gave him a morphine suppository on the 4th day. He went into a coma shortly afterwards and passed peacefully in 2 days in his own bed with all his family around him on Skype or by his bedside. Actual death was peaceful..he just stopped his labored breath..and it was over. He didn’t seem to be in any pain. Hope this helps.
July 11th, 2010 at 11:04 pm
I’m 34 had heart failure 2 years ago almost…don’t know what to say about all this. had amazing doctors and stuck to the script. i had idiopathic cardiomyopathy. my ef was 13% i think. Last time i went, it was 52%. my meds worked along with the low sodium and i made a statistical full recovery. i’ve been “celebrating” a bit too much for the past year though and am so appreciative of this site…for smacking me upside the head with some reality. i’m “lucky” in that my CHF kicked in while my body was strong enough to fight it…
July 12th, 2010 at 5:56 am
I’m reading your posts and trying hard not to be scared. My husband had edema of his feet and ankles and the got cellulitis. Took him to urgent care on Friday and they admitted him. When the dr came in yesterday she said my husband has CHF, kidney problems, liver problems and of course the cellulitis. I am scared out of my mind. He is 64 years old and retired two years ago so he has no health insurance. He was hospitalized on Friday night and how they say he may not be released until Saturday. Tomorrow he is supposed to have an echocardiogram. Thank you for the encouragement that you give each other on this site. God bless you all.
July 16th, 2010 at 10:41 am
These posts are so touching and I can relate so much to many of you. I have had chf for 7yr’s and I believe I’m nearing the end stages of it. I’m staying in the fight for my family’s sake to the end. At 40yr’s of age, I get depressed because I don’t foresee much of a future for me. I try not to dwell on it and Thank God for today and yesterday. I see things in hd (high definition). Tree’s are greener, the sky is bluer, and air is fresher. I take nothing for granted. I see from these posts that I am not alone. We are not alone. God Bless You All.
July 17th, 2010 at 1:55 pm
Our family is relatively new to the CHF world, my mother who will be 88 years old on Wednesday, is at the end stages of this disease( diagnosed in february), we have been very fortunate to have good care and in managing it.. up until now. She has been in the hospital for over a week and the last 5 evening have been such a struggle in terms of sleep, she is just beside herself, does anyone have any suggestions re a sleep aid that lets you sleep at night and is still “safe” in terms of dangerously lowering the blood pressure.
All comments are appreciated, God Bless
July 18th, 2010 at 3:03 am
I JUST LOST MY AUNT LAST NIGHT OF CHF.SHE HAD SOME TEST DONE AND HAD A HEART ATTACK AFTERWARDS.SHE STOPPED BREATHING AND WAS GIVING CPR.SHE ENDED UP IN CCU AND HAD BREATHING AND FEEDING TUBE.DOCTORS STATED SHE WAS AT HER LAST STAGE.SHE WAS ABLE TO BREATH ON HER OWN AFTER A COUPLE OF WEEKS.THAN 2DAYS AGO THEY PUT HER A REGULAR HOSPITAL FLOOR.SHE SEEM LIKE SHE WAS GETTING BETTER AND ALL OF SUDDEN HEALTH WENT DOWN HILL AND WE GOT THE CALL TO COME TO THE HOSPITAL.MY AUNT PASSED AWAY BEFORE THE FAMILY MADE IT THERE.
July 20th, 2010 at 5:38 am
I was diagnosed with CHF and cardiomyopathy in 2000. This after a trip to Walmart to buy groceries and then on to the ER, as I was so short of breath. They gave me a shot of Lasex, sent me home and I was back three days later with the same symptoms. This time they kept me and did testing which included a hearth cath. My ejection fraction was 18. EVERYONE who has CHF should know their current ejection fraction. It is “the fraction of blood pumped out of ventricles with each heart beat. Healthy individuals typically have ejection fractions between 50% and 65%.” http://en.wikipedia.org/wiki/Ejection_fraction
From that time on I was put on medications including: Coreg, Digoxin, Bumex and Lisinopril. They helped the symptoms improve somewhat. COREG has saved my life!
In 2003, I went on infusion therapy, which is where you are injected, through a port for five hours a day, three days a week, with medications to hopefully improve heart performance. At this time, I went on disability. After seven months of this and two different types of medicine (Milrinone and Debutamine), I asked my cardiologist if I could discontinue as I didn’t feel any better and every time I was in clinic the heart monitors going off would make the nurses crazy.
So, we continued oral meds and they have been successful in keeping the CHF at bay. I have to watch my salt intake and I am also Type 2 diabetic.
At my check-up yesterday, my newer cardio dr., told me my EF is 45 and I am in Stage 3 of CHF, Stage 4 being the worst.
I don’t do a lot and rest a lot. Rest is SO important with CHF. I cannot stress that enough. And, rest may come at 2 PM, but not at 2 AM. ie. Last night I crashed at 9:30 PM and was up 3:30 AM, with visits to the bathroom every two hours.
There is life after CHF diagnosis, but it may require some adjustments and, by all means, let people help you when they ask. Simple tasks such as changing the sheets or vacuuming can become tiring.
Make sure you keep your feet up, salt down and if you smoke or drink alcohol, STOP NOW!
July 20th, 2010 at 5:42 am
Randy, make sure her head is elevated. I use two pillows and fold the top one over and sleep on my side. Otherwise, the fluid builds up and you feel like you are drowning and coughing becomes horrible. I take an otc antihistamine to keep fluid at bay for my sinus drainage and noticed this helps CHF fluid too. Walmart has their brand called Chloratab which is wonderful and cheap.
July 21st, 2010 at 6:34 am
I do not have CHF at least not ye. My only biological daughter was born with it and is now almost 13. She was not promised 15 minutes yet she continues to survive. I read many of your stories and my heart aches for all of you. Continue to pray for strength and ask others to pray for you when you just can’t . Remember God is the author of life……
July 29th, 2010 at 10:56 am
I have chf and know I am failing. When I read the notes above I feel like I don’t have a worry in the world. Knowing what will kill me is comnforting. My dad died the same way as we found him one morning afyer slipping into a coma. May it happen to me.It makes me ask profound questions abpout the meaning of my life to which I have no answers. i want more than just to get thorugh it I want to enjoy every moment leading to the final passing. In the mean time I will make my loved ones as comfortable as possible as it is they not me who have the difficult task of seeing me die. I have a 10 YERA OLD DAUGHTER AND SHE IS SUCH A TREASURE. i WILL TRULY MISS HER BUT I KNOW SHE WILL BE JSUT FINE. LIVE LIFE TILL THE FULLEST THEN SURRENDER I SAY.
LOVE TO ALL
RIC
July 31st, 2010 at 1:34 am
My 87 year old mom has VHF and the last 2 months has gotten very bad. She’s in hospice, bad edema in legs, lots of hallucinations, couldn’t lie down to sleep, can’t walk. 2 days ago she became much more clear headed, able to feed herself with a little help,edema in legs 90percent better, and breathing easier. What happened? I know her heart hasn’t improved but does anyone have an idea how such severe symptoms have gotten better?I can’t believe she is able to have a conversation with us after what we’ve been through.
August 1st, 2010 at 5:33 pm
My good friend passed away February 19, 2010 from Congestive Heart Failure. She was 23yrs old. I wouldnt assume just older people get this, because I found out first hand that no matter what the age, you can die within the next second, from almost anything. Appreciate your family and friends, love till the end and never give up hope. RIP Tina, Miss you and love you <3
August 7th, 2010 at 12:10 pm
I am a 55 year old mother/grandma and am suffering from CHF. I have had it for almost 20+ years now and the right side of my heart is effected. I want to ask if anyone else suffers from pain up into their neck when their breathing becomes difficult or they are in heart failure. I have told the doctors about it and they have all said that it is nothing.
I read what I can about this disease but must admit that I am frightened when I read about the end stages of CHF. I don’t have the stamina to do my gardening anymore and even sitting down to sew has become a harder chore to accomplish. I am tired most of the day and without sleeping med from the doc, I just can’t sleep. One thing that I was glad to find out was that anxiety is one of the symtoms of CHF. I thought I was just going crazy for no reason inparticular!!! I have no one on whom I can rely on for support. My husband tries but I think that he just doesn’t want to deal with it. I truely feel as though my life is just about over and I am afraid. I know that there is life after death but the fear is there nonetheless. Sometimes I pray for life to continue but then on a bad day when getting a breathe is difficult and I am alone, I pray for death to come soonest. I am also angry that because of passed health issues (such as blood clots) the CHF developed when I was still in my 30s. I am angry that because I am poor, a heart transplant is never going to happen. I think I am just plain angry!!! The feeling of powerlessness gets so overwhelming at times all I can do is cry. I want to know why this is happening!! I think that a society that can send men to the moon should be able to cure CHF. I want to see my grandchildren growup. I want to do things with and for my own children that I was never able to do as a finacially straped single mother. I suppose these days I would just be glad to be able to take a breath without pain. Well I have rattled on and so will close now.
August 23rd, 2010 at 9:14 pm
My father, 63, has had at least 4 heart attacks, never treated. Smokes, drinks and was admitted in May due to fluid in the lungs. Congestive Heart Failure. His heart is at a 9% capacity. He’s not strong enough for any surgery. Including pacemaker, angiogram, etc. He will not even consider a transplant, nor would he make the surgery. He takes his meds….I see him declining. He has the phlegmy cough, he is weaker, aged considerably, his hands shake. He continues to smoke, drink and bowl. In all seriousness, how much longer does he have. He will not go back to a doctor.
Thank you.
September 1st, 2010 at 1:26 pm
I have a question – my mother is 78 years old with CHF and COPD years ago. Currently she is short of breath, on 3 liters of O2, 160 mg lasix, diabetic, weight fluctuates daily, pulse rate fluctuates and is currently going up, (92 at last check), on antibiotics for bronchitis. Are the any ideas for general expectations? We have her at home and want to keep her there as long as possible.
September 12th, 2010 at 2:16 pm
mother has low sodium, Blood sugars are running between 350/589. Abdomen distended, constant burping. Resting quite a bit. We are now at almost 6 months since my last post. She is a hardy lady, sense of humor. Her pacemaker was found to be misfiring 6 months ago. Her short term memory is bad, going blind rapidly now. Nurse told me today that her pancrease is going. What is next?
September 13th, 2010 at 9:31 pm
My 72 year old mother is dealing with CHF & panic attacks. Very difficult to watch. Anxiety medicines not working, she is not able to sleep consistently. When she becomes agitated, it turns into full blown panic attacks, wishing to die, angry because hospice and family cannot help ease her suffering. Don’t know where to turn. Hospice doesn’t seem to get it.
September 15th, 2010 at 2:37 pm
My father passed away on August 25 of CHF at the age of 81. He was suffering for a long time with many health issues but the last few weeks in particular were total torture for him. He wasn’t able to breath well, he will panic, sweat profusely, and get very depressed, to the point of begging for God to take him away. It was extremely sad for me to see him like that, slowly dying. On his last day his breathing got very difficult and his sugar level had dropped considerably. At the rehabilitation center where he was staying they decided it was time to send him to the hospital so they called the paramedics. My daughter and I were holding his hands as he was struggling to breath. He’s will was that he didn’t want any intubation or artificial machinery keeping him alive, so the only thing the doctors could do was give him some morphine to make him more calm. It was the most stressful and painful experience of my life. I felt so impotent not being able to do anything to help him. He fought to the last minute and then, I guess when the morphine kicked in, he gave up, stopped breathing and could see the flat liner on the screen. It was extremely painful but at the same time I was relieved that he wasn’t suffering anymore. Now it has been three weeks since his death. I have gone through many stages of mourning. I still cry a lot here and there but time and my faith are slowly transforming the shock and pain of loosing him in all this wonderful memories I’m left with of my father. I even feel like he is sending me little signals from whatever he is, because he would had never want to see me sad. So when I get too sad I remind myself that he didn’t want that for me…as I wouldn’t want that for my own children when my time comes. My advise to those that are going through it now is be strong, if there is nothing you can do to alleviate their condition, just be there, tell them that you love them, hold their hand, caress their backs, give them hope for the other side. If they are rude or aggressive, please ignore them, change the subject, be silent if necessary. It is the hardest thing will have to do, witness our parents go, but that is how this world is, there are no alternatives. God bless you and give you the strength.
September 15th, 2010 at 4:13 pm
How are people surviving 10, 25 and 20 years? What type of heart illness do they have? What kinds of lifestyle changes did they make? Do they eat any salt; did they cut all alcohol; how much do they exercise?
September 16th, 2010 at 9:40 pm
My mom found out that she had chf about a year ago. She had a heart attack several months before her hospitalization. she didn’t even know that she had a heart attack. she would always complain of having a bad cold, until March of last year her ankles and feet became swollen and she had difficulty breathing. On March 31, 2009, she was diagnosed with chf and enlarged heart. Since then, she had a pacemaker/defribilator implanted in November 2009, been in the hosptial with pneumonia three times,copd, dvt, and pulmonary embolism. This past june she went into respiratory failure and ended up in ICU with DIC (Disseminated Intravascular Cogulant or “Death is Coming”).She was on coumadin but it failed. They gave my mom 24 hours to live. she wasn’t responding and her kidneys were shutting down, they even had her medicine to maintain a blood pressure, the ventilator for life support. In addition she had a bleed out in her stomach in which they had to take the contents out of her stomach. That was a scary experience, but I prayed and believed that God deliver her and he did. God is awesome! The doctors stated that it was a miracle because not too many people survice DIC. In the next 24 hours, my mom’s kidneys begin to work properly, she started responding and she woke up. Although she woke up, she was still on the ventilator. She was on it for about three more days. It was hard seeing that because she was awake and couldn’t talk. After improving, she left ICU and went to another floor for about two more weeks. Before discharge, the doctor stated that her heart was at 15% ejection fraction and that she now has chirrosis of the liver due to a clot in the portal vein because of congestion in the liver. They stated that her prognosis is short term. So we have another diagnosis added. I will continue to pray for my mom on this journey. She is fiesty and has a will to live and I love and I will support her throughout this experience.
September 16th, 2010 at 9:45 pm
I forgot to add to my post that she has to take lovenox shots daily to keep from clotting and she was also diagnosed with thyroid problems. She is also on so many medicine (lasix, diogixn, potassium, lisinopril, lovastatin, syhnthroid, bidil, omeopotzole.
September 19th, 2010 at 10:00 pm
In 2007, my husband had his first heart attack 5 days after Thanksgiving; doctors put a strent in and on Dec 23rd, he had another heart attack…the strent rejected his body/another strent was placed. Then on New Year’s Day, my husband had his third heart…yes, back-to-back. the doctors called him “Holiday Boy”. He was only 51 at the time. He had a triple-by-pass and suffered a lot of heart muscle damage. He was diagnosed with congestive heart failure. That March, he received a defiberator. Came home ready to give up…but I wouldn’t let him. First, we spent many months back-and-forth in the hospital. Doctors in the ER kept telling us “there’s nothing they can do”. We refused that answer. Last year, he was able to go hunting and fishing which he loves…I mean LOVES. I created a thick pad to go over his shoulder so when he shot the shotgun-he wouldn’t do any damage to the defiberator (he killed a deer).Yes, there are days right now when he can’t do anything bacause he’s short of breath or having chest pain. I never let him see me cry. Pray works… Sitting around and giving up is not my husband. WE’RE not ready to give up…SO please don’t let this disease control you. FIGHT BACK
September 20th, 2010 at 4:47 am
Firstly bless you all for sharing your issues, it saddens me to see so many young people that have lost their lives. My husband was diagnosed with atrial fribulation when he was 24 and at that time he was the most healthiest person I know. He did many martial arts classes, didn’t smoke and only drank at weekends. His health has progressively got worse over the years. He has been through depression as well as difficulties with holding down a career. After having children we moved to a country location for the clear air. He is now 40 and we have recently become Christians, do youth work and he is now in CHF. He rarely sleeps at night, has blood in his mucus, can’t lay flat but is still struggling on with going to work as well as singing in a band and worship group. He got Baptised 2 years ago and feels that God is really helping him through this. My heart goes out to you all because I know what it is like to watch somebody suffering so much and feel totally helpless as to how to help. We have both decided that we are going to have a change of lifestyle and hopefully turn this problem around with healthy food and gentle exercise. We have also found out that it has been passed down from his family and our two children have a small sign that they too may have this problem. I wish you all the best and may God put a protective covering over your families.
September 21st, 2010 at 4:39 pm
Hi,I dont realy know what to sayso i will start from the begining.My husband is 74@i am 63 years old he has had 4 heart attacks,ten years ago he had triple by pass and pigs valve put in.Last november we were told he has got termanel cancer,then three months they said he is at end stages of heart failure,I know how long he has but i cant belive it as he does not look to bad, he does not know himself i dont think he wonts to know as he does not ask any questions.I is very hard for me,I am sorry if i have kept on as i could not talk to any one.Linda.
September 21st, 2010 at 6:15 pm
My 91 year old mother lived with me for 6 years until 2 months ago. Now she is in a nursing home because I can no longer take care of her. She was just discharged from a 2-day stay at the hospital. They say she has end-stage CHF and I am meeting someone tomorrow who will evaluate her for hospice care. Her weight is about 85 lbs (Lost about 40 lbs this year). No appetite. One lung is collapsed but keeps filling with water. Her kidneys are failing, and on and off she starts losing blood. She has a large bedsore on the tailbone and has two fractured bones at the bottom of her spine due to osteoporosis. She is starting to become a little confused, but is basically still mentally sound. She can’t walk anymore, and has no control of her bowels or urine. She says she is ready to go, and I believe her. It will be a blessing when she passes, but meanwhile I selfishly don’t want her to go. I am her only child. The next few weeks and/or months will be scary for me. I hope they will not be too hard on her. God Bless all those who are currently suffering, and God Bless their caretakers, too.
September 28th, 2010 at 12:41 pm
My Significant other is 58 years old.Has had 3 heart attacks,a stroke and CHF.Has had 2 bypass surgeries that
have failed.is condition is being controlled w/meds.(30 plus and insulin)He feels he’s dying.MD told him to get his affairs in order.Help???Wants a dog???
October 8th, 2010 at 6:37 am
I am a 47 year old woman with chf. I am always tired but not in a financial position to quit work. I am so very very tired.
October 13th, 2010 at 10:38 am
My father was diagnosed with CHF whenhe was 79 yrs old, this was 6 years ago. I was told that he was stage 3-4. He had entered into end stage was having difficulty breathing walking, sleeping. I did some research regarding supplementation of Co Enzyme Q10 asked the cardiologist if it would be okay to add to his meds. I started to give him 100 mg twice a day, in about a week all symptoms dissappeared, no more swelling of ankles, shortness of breath, or fatigue. He has been on this regimen to this date and is feeling great. Check out the web for info on this, you will be surprised. I had come to the point that I could’nt stand to see him suffer, so we decided to give it a shot and it worked as stated.
October 14th, 2010 at 9:16 pm
My mother is in final stages of CHF. We are in the process of getting hospice to come in my home. I have taken care of my mom for 3 years, she was a heavy smoker and drinker, I just want to know how much longer do we have to suffer, she is in good mind, but legs are huge and she can’t breathe. She is tough and has just ask for a pain pill for the first time today, her leg is hurting her in the groin area and her left arm is hurting also she coughs alot and spits up bloody mucous. can someone just tell me how long do we have to endure this?
October 14th, 2010 at 10:11 pm
I took care of my Mom for almost two years with CHF. She had valve replacement and ring around another one. The surgeon came out of the operating room and told me she was not going to make it. Well she did! ICU for one month. Then around 9x’s more to the er the first year. I researched all her pills. I watched for changes in her like the gaining of 3 lbs, or fluids building in her legs. Id increased her lasix. You have to check the her heart rate first. Elevate the feet. Get a electric lazy boy for them to sleep in when needed. Pillows to elevate in the bed. Put phone books uner the mattress to elevate it. A portable potty by the bed to save energy.Boost drinks and gatorade. If bed bound get new pjs! I put lipstick on her as it made her feel better. Use the time when they are able to do things…do them! Pictures and videotape when they are feeling better. My Mom lived much longer than the dr’s or nurses predicted. Only God knows the time. We used Hospice. I knew when it was time to give her the morphine. Breathing does get slow. They gave her a patch to help with the fluids. She passed july 26. I miss her terribly but have special memories or her last 2 years and more. God bless in this journey.
October 14th, 2010 at 10:15 pm
BTW By watching her symptoms and doing something fast we were not in the hospital for 11 months! Her heart infraction was 5-15% during al this time. Her heart just got too weak to carry on and she fell…..20 days later she passed away.
October 14th, 2010 at 10:19 pm
use oxegen machine too
October 19th, 2010 at 1:46 am
I just lost my father less than 2 weeks ago to congestive heart failure. He was only 55 and really no heart problems. The night before he died he was at my house for 3 hours or longer and acted fine, but I did notice he was very swollen, and I could hear him breathing was loud. I am just wondering if he suffered while he was alone the next morning when he died and I can’t get any answers. It is killing me to know if he suffered while dying. Does anyone know what happens to someone who dies suddenly from heart failure suffer, I need some sort of closer, I am grieving and I need just to know if he suffered at all if anyone knows.
October 19th, 2010 at 1:54 am
I don’t know if was awake or not when he passed, I hope he was sleeping and didn’t suffer, but if he was awake I just want to know what happens to someone who dies from congestive heart failure. I hope I can receive some answers to help me understand what he went through his last moments of life.
October 24th, 2010 at 5:53 pm
My mother passed at the age of 40 with a massive heat attack,my father passed away at the age at 50 with a massive heart attack, in 2008 i had a massive heart attack lots of damaged was done to my heart had a defibrilator installed and 1 year lator removed the srew purfed my heart i have been in and out the hospitol 46 times with severe chest pains they say i have had 3 mi which are heart attacks and 2 tia wich are strokes,my wife doesnt know how to live with my conditions i have diabetes carnary heart disease and nuraropaphy i lost my job where i was a manager my hole family was working for me and it all went away over one night now we are all suffering is there any help out there just need a home to live in and some help with my meds.
October 24th, 2010 at 11:41 pm
My mom was diagnosed with COPD and CHF about three years ago. Unfortunately she didn’t take either diagnosis seriously and did not take the inhalers prescribed, or follow up on medicine for her heart. Last summer she was found unresponsive in her home and taken to the hospital. She had lost down to 97lbs and stayed sick to her stomach all of the time. After a two week stay in teh hospital, they sent her home with oxygen. Her heart stopped beating several times before they decided to giver her a pace maker. In the past year she has gone from being able to take short car trips, even shopping trips with her oxygen to being homebound. I found her yesterday slumped in her chair, unresponsive, and her oxygen tube that goes around her nose was on the ground. We aren’t sure how long she had gone without it, but the hospice nurse is estimating about twelve hours. Now she has lost coordinationin her hands, and is not thinking clearly. She can’t bath herself, or clean her dentures. I’m just wondering how much longer she has left to live? What can we do? Do these hospice people know what to do?? I’m an only child, 34 years old, adn a mother of two small boys. My mom is divorced so I am her only caregiver. I also live an hour away from her. HELP??
October 27th, 2010 at 4:03 am
My husband has congestive heart and lungs. His feet are purple he no longer wants to eat. He rarely gets out of bed even refuses to bath or get sponge bath. In the last 3 days he drank 2 cups of coffee and a little 7up has ate nothing. How long can he live like this. He is always in pain.
October 30th, 2010 at 11:45 pm
My 89 year old mother’s doctor had noticed a strong sounding flutter in her heart and she was scheduled to go into a heart clinic for further diagnosis, but who knows if they would have been able to do anything. She collapsed and died of heart failure after complaining of a pain in her chest. In the few seconds between her complaint and her collapsing, the pain did not appear to be any more than sharp indigestion. Obviously no one can really know, but I believe of all the ways to go, it is one of the most merciful.
November 1st, 2010 at 12:10 am
My Mom passed away 2 months ago from CHF. She managed quite well for over 2 years until they added Warfarin to her Plavix. She developed an upper GI bleen and died 12 hours later. I wish I understood exactly what happened. Her blood pressure was 80/40 at the end. Did she die in her sleep? was she scared? What did she feel?
November 4th, 2010 at 10:12 am
My mother passed away 3 years ago of congestive heart failure. It was the most painful thing that I have ever went thru of my 29 years of living. She started getting bouts of nausea about 1yr before she passed. After that she got progressively worse. She was in and out of the hospital until one of the heart specialist told the family that there was nothing else that he could do for our mother. She then went into a nursing home because she could not take care of herself but I think she was determined that she was not going to die in a nursing home and demanded to be sent home. I would stop by everyday 6months into her CHF to check on her, but it became increasingly harder for me to do. To watch the woman that gave you life slowly losing her own is a feeling that I cannot and will not ever be able to explain! Mom later passed away at home 1 week after leaving the nursing home. I wish that I could have been there with her but the thought of losing my mother made me almost lose control of my own self and I just could not bare to see her die.
November 11th, 2010 at 2:47 pm
My father passed away on 11/1/10 with congestive heart failure. He was very sick for several years, had diabetes and high blood pressure but lived with THAT for almost 30 years. In the end, at 81 years old, he was very swollen, cold, very fatigued all the time, slept constantly in his lift chair but could not lay down and get comfortable enough to sleep in his bed at night. His caregiver was my mother and it took a toll on her too. He simply took a breath and laid down and died. I think he knew he was dying but he did not, according to my mother, seem to suffer any pain, just labored breathing. He died at home which he wanted, with my mother but I wish I was there too. I came about a 1/2 hour after he died. It was horrible to see him just lying on the floor like that. If I ever get this disease I’m going to kill myself because the doctors don’t know squat about curing anything, especially stuff like this. All they know how to do is give you medications.
December 7th, 2010 at 9:36 pm
After reading these stories it gives me strength that there are so many good folks out there just trying to make the lives of the suffering easier. My dilemma is wondering when to talk about the next world that the elderly are headed for- so they have something to look forward to after the pangs of death from this world. I hope they can find joy. So many stories there are of people seeing their deceased relatives after death telling them that they are ok and doing really well… out of disease and into freedom. That’s what I told my mom when she died and she gurgled “that’s beautiful” before passing peacefully. RIP Mom
December 19th, 2010 at 1:11 pm
I wanted to know,my father is 80 years old presently in hospital, has been disgnosed congestive heart failure,diabete’s,high blood pressure. My question he is in a dementia state,or non-responsive, he has had 4 episodes of his heart stopping for 7-7.5 seconds, I know he is close to death,with the time his heart stopped does this do more damage, and if they are continuing fluids and the cathater,will this just prolong his condition, he also has edema. thx Greg
December 22nd, 2010 at 10:48 pm
Yesterday mom went to ER again. They admitted her but today they released her stating that there is nothing that they could do. They daid she now has Kidney failure on top of severe CHF, COPD, previous blood clot in lungs , chirrosis of the liver, and thyroid problems. They told me to make sure she is comfortable and to consider Hospice. Keep us in your prayers.
December 23rd, 2010 at 8:22 pm
I will keep you in my prayers….My grandpa who is 93 is almost in the same situation. He was in the hospital last week with really high levels of potassium and BNP levels from end stages of CHF. His breathing is becoming more and more shallow and normal tasks like walking across the room are becoming more difficult. They had a their pastor come to the house today! He is my best friend and I can’t even imagine life without him. Not fun! I will keep you and your family in my prayers!
January 21st, 2011 at 3:57 am
hi guys i on december 22nd 2010 i lost my mom to CHF (conjestion heart failure) an i didn’t’ even know the sympothoms she never even went to the hospital it got her by surprise me an my brother never even heard of this disease until now an even now were still hurting
February 8th, 2011 at 6:45 pm
Seeing a person struggle with this illness is tough. Especially, when you notice a person struggling for air. Today, a lady who was like a mother died from this disease!:(
February 20th, 2011 at 9:18 pm
was working…was diagnosed with CHF…the next week, was laid off…insurance ended one week later…im now in stage 3…i WISH the cardiologist had sat down and told me more…i called to get questions answered…no insurance…no answers.
March 27th, 2011 at 12:42 pm
my daughters in the hospital now with chf and kidney failuer i dont want to lose my child
June 18th, 2011 at 11:38 pm
My MOM has CHF the Hsopice nurse told her that she has about 3 months to life. I see my mom I know she has longer I was told that I can not accept the dease…. I see my mom has lost 50pounds since she moved in with my family and I becasue she is not constantly eating junk food or eating out and taking in too much salt. I think that there scaring her and that bothers me. what to do?
what exactly is end stage I was told that it can go on for 20+ years she has only been 8 months with the diagnossis I think that she likes the attention that Hospice gives her but I also think that she has longer stamina then she did 5 month ago. I think that she is just going to give in becasue she was told that she is near the end. My mom is 68 yrs and what bothers me even more is that I have the same symptoms as she does and I think that she kinda well says more then what is really wrong with her. My mom has always been a attention getter and I think that this fits the bill for her. she gets special attention (I am ok with that) and I think that she like the schock value that it brings to her when she tells people that she is dying.
I really do not like attention and I hate being the center of it as she likes the lime light. I know that were two diffrent people but is it possible that she read the manule and is well kinda living the manuel. NO I am not saying she does not have CHF I am saying I think she is well kinda faking it abit. I caught her jumping up and down and dancing around when she thought no one was home. so I have to ask myself is this for reals? is she really a sick as she says she is?
do the Doctors really feel she is dying?
or am I just in deniel?
what are the symptoms of end stage I feel there kinda vauge and not really listing the real issues here….
PLEASE give me some insight.
Sincerely
Jane
July 7th, 2011 at 1:05 pm
My brother is 53 years old…He had a MAJOR heart attack 3 years ago…one of his major arteries is 100% dead, another major atery is only functioning at 30% capacity…we are told his oxygen intake is approx 27%. If he showers he must nap for 2-3 hours…he sleeps approximately 19 hours a day….and not very well. His ankles began to swell about 8 months ago…he took low dose water pills…2 weeks ago we took him to hospital…we estimate he is holding close to 80 lbs of fluid…his scrotum is so swollen it looks like a small cantalope. He was sent home from hospital after 3 days with orders to take 60 mgs of lasix a day…swelling still severe…he also has an arotic anyeurism (3.9) needs to be checked…and has 2 stints in his low performing artery…how long can he survive like this? My mom is 75 years old, we lost my dad 7 months ago, and she just can not care for him like he needs…doctors act like this is not as serious as it is to me? Can you offer me some advice?
July 8th, 2011 at 11:51 am
My mother has had heart related issues for over 10 years now. She has had high blood pressure for as long as I can remember, 210/110. She goes to the Dr. every month for blood work and they say it is good and her blood pressure has come down. She is on coreg, diovan, coumadin and torsemide. She has CHF and recently the company she got her torsemide from discontinued the one she was taking (she is also very sensitive to drugs) and the drug store gave her another one suppose to be the same thing and she took it for a week and started feeling awful. She gained weight of 3-4 lbs. and had shortness of breath and lost her appetite. She stopped taking the new torsemide about two weeks ago and feels some better but as of this morning she was in the bed when I called and still has no appetite but forcing a little bit down. She is having trouble having a bowel movement and got some prune juice today. My question is she has no swelling in her feet and hands. She has always had a big stomach. If she is not taking her diuretic for two weeks why is she not swelling but feels the way she does. As with so many others I live six hours away and this is so hard. I have ordered her some CoQ10 and having it shipped to her and told her to drink a little apple ciday vinegar as it is a natural diuretic. She is really done in with meds and hospitals!
August 17th, 2011 at 2:49 am
My dad passed April 14 from CHF and it has been the most painful thing that our family has ever had to deal with. He was 75yrs old. He was diagnosed about 15yrs ago. The last year of his life he complained alot about nausea and feeling full. His appetite was not good at all. My mom had to make him eat. My dad was such a strong man and seeing his health decline was painful and heart breaking. My sister and brothers are trying to be strong and help each other cope with our lost. But our main concern is our mother. Since dad passed she has not been the same. Her best friend, her husband of 50yrs is gone!! Its breaks our heart to see so sad. We have been told by others that time heals all wounds, and we know that but the pain is still so fresh so new like an open wound. We now truly know what a broken heart really feels like. To those of you who still have your love ones treasure every moment and tell them you love them every chance you get. If I could just talk to him again or just see his handsome smile….Treasure every moment. You all are in my prayers.
August 20th, 2011 at 12:13 pm
I enjoyed reading this but only because I know I’m not alone. I’ve had CHF for the last 3 years due to 2 heart attacks I had while pregnant with my daughter. To be completely honest I didn’t take it very seriously until a few weeks ago due to a depression I had about it but the idea of having to undergo yet another surgery scares me and seeing my daughter grow up makes me realize that she needs me and I need to put more effort into this,I’m starting a regular home fitness and proper meal plan today to work towards getting better. Thank you all for your stories as it has helped me work through the issues I had with being as young as I am.
August 20th, 2011 at 2:20 pm
To Jane, June 18th: your situation sounds a lot like mine about 4 years ago. My mother was in hospice. After a couple of months she declined the services.
The best suggestion I could give, is get a second opinion from another doctor.
My mother has had many ups and downs (many of which have brought the family good scares), but she is still with us. Had my mother stayed under hospice care there is no doubt she would not be here today. There services are limited. This is nothing against hospice, I just believe this service is meant for people who truly are terminal. Hope this helps.
September 13th, 2011 at 11:31 am
My husband is the patient. He is 89 and his
third year into CHF. Sleep – reduce the stress,
Xnax. .5 mg. helps him relax. He is in stage
four, I feel the end is near. Life is tragic
for an active person, be 25 or 95, at least the
older generations has lived a full life and the
25 yr. old will never know the plesures and gifts
of life. Seeing your loved one fade is so very
hard. God bless those who care for them and advise
us on care. Pray that all of you are patients of
a CHF clinc, in addition to a good Cario Doc. May
you all be blessed.
January 14th, 2012 at 9:10 pm
First I want to say my prayers are with anyone suffering from CHF. It’s not something anyone wants to go through or see a family member go through it. My grandpop is 83 years old, he was diagnosed with CHF a little over 3 years ago and refused any kind of surgery. So he’s been on medications to basically help him stay alive, he gets routine blood work and sees his cardiologist and family doctor on a routine basis, he had got progressively worse in da last year, he is in stage 5 now, he still has a normal appetite but he is tired more than often, he doesn’t have the energy to even walk from one room to the other and also without getting out of breath, and he needs help to wash himself up. He went to another cardiologist for a second opinion and the cardiologist told him, he can’t give an exact prognosis but he can give him an estimate of probably 3years without major heart surgery or 5 years with surgery. His cardiologist that he normally goes to called my grand mom a couple of wks ago and told her his echocardiogram is the same and basically whats going to eventually happen is his valve with eventually deteareate to nothing. Me, my family n himself refuse surgery due to his age, medical conditions including, CHF, hypertension, kidney failure, diabetes, and plus his heart is already so bad, his ejection fraction is less than 10%. We don’t want to risk him going under and them stopping his heart, in da condition he’s in were afraid he might not wake up and we might lose him sooner than we would have if we didn’t do the surgery. Me n my family are afraid that he’s going to go into sudden cardiac arrest. Please keep me n my family in your prayers. Thank you
April 10th, 2012 at 4:37 pm
Andrew, don’t you know what a vaccine is? It’s a lesser form of the virus itself! Your body is given a taste of what to expect so that it can begin develppoing the proper antibodies. Or was that the flu shot that did that..?
April 13th, 2012 at 3:48 am
Am from kenya…my mum was diagnosed with heart failure 7 yrs ago only last month suffered frn stroke..her cardiologist said she cant nt go a surgery becoz of her condition,she has bn in a semi comma since then and she is very weak, the doc said there is no much hope which has left us as a family devastated..pls people pray with us en God wil do miracle to all those pple suffering frm CHF… GOD BLEss
April 27th, 2012 at 8:40 am
my 86 year old mother had vericoius veins ,tired,falling a lot, and living alone..walked on a walker..for the last year, my husband did most of her cooking and cleaning, although she still did some including all of her own laundry..In november my sister and i took her shopping and she could not make it through the second isle. we did not take her again without the wheel chair. the first week in january, 2012 she fell again and the paramedics said she should no longer try to live alone.she went home with my sister that night and to my house the next day to move in…she needed help to the toilet and get bathed and dressed,etc….after about 10 days she started vomiting a lot for no apparent reason..we became worried about dehydration so took her to er…they immediately started oxygen and drip…put her oxygen on highest..in a couple of days, they put in a pacemaker. almost instant her thinking was back right, her vericoius veins seemed to disappear and he kept her on oxygen…a few days later placed her in a convalecent home…two weeks later she started swelling again and had a real hard time breathing..she was in the home struggling to breathe, get up, wipe herself, roll over, place her pillow or just about anything for 54 days, when she gave up…april 1…she had her right mind to the end..she was in pain in her stomach and struggled so hard to breath, it was almost a relief to see that stop..i miss her so very much…she would have been 87 on the 20th of april…we were blessed to have her this long